Childhood cancers
Getting Started
American Cancer Society (ACS)
The American Cancer Society (ACS) is a voluntary health organization focused on eliminating cancer as a major health problem through research, education, and advocacy. Access authoritative patient and family information on cancers and therapies, alternative therapies, tobacco, statistics, and professional journals.
Cancer Information Service (CIS) (National Cancer Institute)
Cancerbackup
The UK's leading cancer information service, CancerBACUP is accurate, up to date, and authoritative. Keep British spellings in mind when searching the site by keyword.
Cancercare
This site offers information on types of cancer, treatment, emotional and financial support, coping, practical help and guidelines for patients and families, legislative alerts, events, and other cancer-related issues.
Central Line (CVL) Preparation: My Central Line
This printable book is written for parents and their children to learn together about daily life with a central line. It is designed to reduce child anxiety with regard to this medical procedure and related issues. The book includes simple explanations with pictures, as well as Spanish translations. My Central Line is written by certified health professionals
Childhood Cancers (National Cancer Institute (NCI))
Information on childhood cancers provided by the National Cancer Institute (NCI). Included is information on cancers, treatment, supportive care, clinical trials, prevention, genetics, and causes. Also provided are related articles and booklets for patients and families.
Children's Cancer Association (CCA)
CCA has worked to offer award-winning programs, including family resource programs, outreach resources, music therapy, mentoring, retreat programs and support programs. CCA provides information, advocacy and support to help enrich the quality of life for children diagnosed with cancer and their families.
CureSearch (National Childhood Cancer Foundation. Children's Oncology Group)
CureSearch is a world-leading pediatric cancer research collaborative. The site provides patient information for new diagnoses, treatment, end-of-treatment preparation, and survivorship resources. Included is a nationwide directory of support resources and information in Spanish.
Leukemia & Lymphoma Society
The largest volunteer society in the world, the Leukemia-Lymphoma Society is dedicated to funding blood cancer research, education and patient services. The site has comprehensive patient resources, including support directories, call centers, financial support, free materials, and online chat for patient help. Patient information on diseases, advocacy resources, and links to current research for health and science professionals are included.
Mediport Preparation: A Port for Me
This printable book is written for parents and their children to learn together about the need for a Mediport. It is designed to reduce child anxiety related to this medical procedure and accompanying issues. The book includes simple explanations with pictures, as well as Spanish translations. A Port for Me is written by certified health professionals.
National Cancer Institute (NCI)
The National Cancer Institute (NCI) provides cancer information for patients and the public, health professionals, and basic researchers. Included is general information about cancer, treatment information, detection, prevention, genetics, and clinical trial information.
National Marrow Donor Program
The National Marrow Donor Program (NMDP), in partnership with the Marrow Foundation, are nonprofits dedicated to creating an opportunity for all patients to receive the bone marrow or umbilical cord blood transplant they need. This site has information about becoming a donor, treatment options, and survivorship.
NYU Cancer Institute
The NYU site features adult patient care topics such as patient information on types of cancers, finding doctors and doctor profiles, patient support services, outreach resources, and research program information. Included are links to pediatric oncology care at NYU Medical Center.
OncoLink
OncoLink is a multimedia oncology information resource, compiled and distributed by the University of Pennsylvania. Access to information on specific types of cancer with topics such as radiation oncology, chemotherapy, and gynecologic oncology information; information on cancer causes, screening, prevention, and clinical trials.
PICC Line Preparation: My PICC Line
This printable book is written for parents and their children to learn together about the need for a PICC line, its everyday use, and its potential benefits. It is designed to reduce child anxiety with regard to this medical procedure and related issues. The book includes simple explanations with pictures, as well as Spanish translations. My PICC Line is written by certified health professionals.
Young People with Cancer: A Handbook for Parents (National Cancer Institute (NCI))
Disability Resources
ABLEDATA
Sponsored by the National Institute on Disability and Rehabilitation Research of U.S. Department of Education, ABLEDATA is a federally-funded project to provide information on assistive technology and rehabilitation equipment available from domestic and international sources to consumers, organizations, professionals, and caregivers within the U.S.
Cornucopia of Disability Information (CODI)
CODI serves as a community resource for consumers and professionals by providing disability information in a wide variety of areas. The information addresses local (Buffalo & WNY), state, national and international audiences.
Family Village : A Global Community of Disability-Related Resources
Family Village is a community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.
Locks of Love
Locks of Love is a public nonprofit that provides hairpieces to children in the United States and Canada under age 18 affected by long-term medical hair loss from any diagnosis. Locks of Love meets this unique need for children by using donated hair to create the highest quality hair prosthetics.
National Disability Rights Network
The Network is the non-profit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. The P&A/CAP network is the largest provider of advocacy legal services to people with disabilities in the country. Resources include links to information on cultural competence and disability topics, public policy and regulatory activity.
WheelchairNet
A product of the University of Pittsburgh's RERC (Rehabilitation Engineering Research Center), WheelchairNet's purpose is to serve the information needs of anyone interested in wheeled mobility. However, its primary audience is the end user - the person who uses a wheelchair.
Brain Tumors
American Brain Tumor Association
The American Brain Tumor Association site has information sheets on symptoms, types of brain tumors, and treatments. Support resources include outreach and care information, an employment portal, health insurance guides, resources for specific age groups, and other therapeutic guides and sources.
Childhood Brain Tumor Foundation
Children's Brain Tumor Foundation
National Brain Tumor Foundation
The National Brain Tumor Foundation has resources for patients, families and friends. The site includes guides to finding reliable health information on brain tumors and treatment, joining support networks, and finding outreach and educational programs. The Foundation is dedicated to servicing the needs of affected patients across the country.
National Institute of Neurological Disorders & Stroke (NINDS)
The National Institute of Neurological Disorders and Stroke (NINDS) of the National Institutes of Health (NIH) conducts and supports biomedical research on disorders of the brain and nervous system. The site provides information on neurological disorders, clinical trials and studies, and research.
Pediatric Brain Tumor Consortium
Pediatric Brain Tumor Foundation
Side Effects
Chemotherapy & Your Mouth (National Institute of Dental & Crainiofacial Research)
Mouth Pain & Discomfort : all you need to know about oral mucositis
Survivorship: Life After Cancer
LIVESTRONG: The Lance Armstrong Foundation
National Coalition for Cancer Survivorship (NCCS)
Disclaimer: The medical information provided is for educational purposes only. It is not intended or implied to be a substitute for professional medical advice. Always consult your physician or health care provider prior to starting any new treatment or with any questions you may have regarding a medical condition.